Category: TBI Survivor's Stories Written by Survivor
Has your life been touched by a Traumatic Brain Injury?
YesSummary - the cause - the injury - today's quality of life?
My Husband had a near fatal car accident in April of 2008 and had TBI. Our quality of life has drastically changed, as has our Family dynamics and we struggle daily to understand and cope with the changes
Please share your experience at the time you became aware of the injury?
At first my husband was mis-diagnosed and we were not aware of what was exactly wrong with him.
It took us over a year to get the proper diagnosis, and even then the best Neurologists, Neuro-Psychologists and a host of the best doctors were and still are very vague about the present and the future.
Tell about the experience immediately after the injury. Surgery? Coma?
My husband was unconscience for 8 hours on and off and the next day he seemed okay...dazed and shaken up but for the most part ok. 2 days after the accident he woke up and had slurred speech, could not walk properly, was dazed and confused and I thought he had a stroke as that was the behavior he was exhibiting. It was very scary.
Tell us about the hospital stay after the survivor was no longer in a coma
The trauma center where he went following the accident never did any work up on his head...no cat scan, no mri and for the most part missed 80% of his injuries, including a severe groin injury and a broken and crushed ulnar nerve in his wrist. It was an awful experience.
Tell us about the time in rehabilitation?
Because he was not diagnosed properly there was no rehibalitation. It has been almost 3 years, and I do believe if he had received the proper care and advise from the beginning, he would be in a better condition today.
Tell us about coming home!
"Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma"
depressing, scary, sad, overwhelming, alone, confused, heart breaking
Tell us about life today?
Life today is different everyday. I get up and thank God I am alive, and that my husband did survive the accident. My 4 children - ages 23-22-21 and 20 and I struggle daily for patience and understanding and to adjust to the new personality and the daily struggles of their father, my husband. He was the owner of a 40 year old thriving business and can no longer work, and I have taken over. My days are difficult to say the least.
What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?
Be patient and event though we had the best doctors in the tri state area, we still aren't certain about the future, but MOST importantly...be your own Doctor, do your own research, and however grim what you read is, knowing the facts and how to proceed is the biggest help.